Personas

PROFILE VON KINDERN, DIE VON EINEM SCHLAGANFALL BETROFFEN SIND

Um die Erfahrungen von Kindern mit Schlaganfall im Designprozess besser sichtbar zu machen, haben wir auf der Grundlage unserer Forschung detaillierte Personas entwickelt. Eine Persona ist ein fiktives, aber forschungsbasiertes Profil, das wesentliche Merkmale, Bedürfnisse und Verhaltensweisen einer Nutzergruppe darstellt. In diesem Projekt erfasst jede Persona typische Alltagssituationen, Herausforderungen und Hoffnungen von Kindern, die einen Schlaganfall erlitten haben, und ihren Familien. Diese Profile helfen Designern, Forschern und Entscheidungsträgern, sich besser in die Situation der Betroffenen hineinzuversetzen und Umgebungen zu schaffen, die den tatsächlichen Bedürfnissen besser gerecht werden. Um den Kontext und die Methodik hinter dem Persona-Set besser zu verstehen, besuchen Sie die Einleitung und das Glossar. Die Personas können auch als druckbare A4- und A3-PDFs für Workshops, Unterricht, Designprojekte und den persönlichen Gebrauch heruntergeladen werden.

Explore the clickable personas below for a concise introduction to our findings. To access the full level of detail, please download the complete set.

ABOUT THIS PERSONA-SET

A persona-set is a collection of research-based profiles presenting different kinds of people, their needs, and their everyday lives. They are built from data reflecting real people’s experiences, with the intention to help others imagine how different individuals experience everyday life, challenges, and opportunities.

This persona-set captures the stories of children recovering from stroke and their families. This set was developed within BUILD CARE, a multidisciplinary research project exploring how the spaces where these children live, learn, and receive care influence their recovery and quality of life. The research included families in three European countries (Austria, Belgium, and Germany). It gathered insights into experiences of both informal environments, such as homes, neighbourhoods, and schools, and formal care spaces, such as hospitals, clinics, and rehabilitation centres.

This persona development was based on interviews with 30 families affected by childhood stroke, cognitive data from standardised neuropsychological testing with 15 children, and findings from an online survey exploring the well-being and socioeconomic impacts on these families, completed by over 100 families across the three participating countries.
WHO IS THIS PERSONA-SET FOR?

Architects, designers, healthcare professionals – the personas can help you better understand the everyday lives of children affected by stroke, including those who make a full recovery and those living with lasting disabilities. They highlight both the challenges children and their families face in the built environment and the creative strategies they adopt to cope. The personas capture not just the physical needs, but also the cognitive and emotional aspects of life after stroke. By sharing these insights, the personas can inspire creating more inclusive, supportive, and enabling environments.

Families affected by childhood stroke – the personas may be just as valuable to you. Many of you will recognise pieces of your own story in these personas, which may help to feel seen and understood. They may also open up conversations about what kinds of spaces and features in the built environment really make a difference in everyday life. As you shape care environments in everyday ways and through formal decisions during the design process, this resource can help you imagine possibilities beyond your own personal experiences. In this way, the personas become a shared reference point connecting families, practitioners, and researchers in building a common understanding of what it can mean to live with the lasting effects of childhood stroke.

Download Introduction & Glossary

A4 Persona-Satz herunterladen

A3-Persona-Satz herunterladen